Night before last night

05052012.0122

Should I be sad? Should I be mourning? Should I face the facts and allow my mood to sink?

Am I lying to myself by being hopeful? Am I fooling the world by not thinking too much about the doctor's words the day mum checked out of hospital?

"It is in the final stages (末期)..." was the only thing the doctor said. He did not know what to say when brother asked for a time. I personally find it somewhat distasteful. As if one could predict when or how or where death, or anything in life, will happen! And what does it matter really? So people could be nicer and do better if someone does not have much longer left? So you could start living more and doing more with your life if you know time is limited?

The doctor was kind to sit down with us for almost half an hour. He drew a picture diagram of mum's inside, and better than before I now can visualise what they did in terms of the surgery and what is causing the jaundice.

I know much of this already, so perhaps that's the reason why I just sat there and let the words wash over me. I felt like I was not in the room, like I was just a bystander, as brother asked the questions and the doctor answered and drew his diagram...

There is a large lump on the duodenum. It is causing food to be trapped in the stomach. They connected a lining of the small intestines to the stomach wall, so that at least some food can leave somewhat naturally down the intestines and be absorbed. The lump is growing larger. It has compressed against the wall of the bile duct, suppressing the flow of bile which normally enters the duodenum. Jaundice is caused when bile, a poisonous substance if not excreted, collects in the body, and it causes the body to turn yellow and causes the liver to slowly lose its functions. Hence mum's continuing tiredness and still yellowish skin tone.

"I discussed with other doctors, and the duodenum is no longer operable." This was contrary to what I was told before, when I was given that glimmer of hope. Hope mixed with anxiety, for back then I was already told it would be a major operation, and I dreaded mum having to face another long stint at the hospital and having to walk on the long road to recovery again... Now, the lump has grown too large, and an operation to remove the duodenum and reconnect the "tubing" in that region ( which involves cutting out a piece of the pancreas, rewiring the biliary tree and readjusting the stomach and intestines even more) is simply too much work and too risky. It's not worth the risk.

"We've done the best we could so your mother can eat. She may still throw up a bit, as some food will still collect in the stomach and not go down the reroute, but at the very least she can eat and drink like before."

As for the bile duct, they installed a tube that is longer and thicker to direct the flow of bile down to the unblocked part of the intestines. For now, it seems to work well, as mum's jaundice level has come down (but still is very high...), but at least the bile is channeled as intended and leaving the body. There is still an open wound and a tube coming out of it, and mum has to have the tube in her for a month or two. The wound has to be cleansed and addressed of every day. Any sign of her skin yellowing more or any sign of fever, she must immediately check into the hospital, for it may be an infection of the wound.

"She can go home and rest and eat. It's important that she eats well and gain back her strength," the doctor reminded us.

Brother is scared, he told me. He's scared of what may happen, and scares of mum's condition worsening. I reassured him in the best way I could. Though, admittedly, I am of course also scared.

"It doesn't matter what will happen in the future, don't think too much about things. They said three years ago mum doesn't have long. Even if something happens tomorrow, or next week, you're doing your best, and you will not be alone. You've got your wife, your kid, and I'll be back too." (momentarily, I must admit, there was a rise in jealousy and sense of longing, for I have none of the important, valuable sources of comfort and support I just mentioned.)

Whatever happens, I am here. I will be here to support you, to support and comfort mum till the very end, I heard myself saying in my head. "You just spend more time with mum, touch her, talk to her, make her feel comfortable and assured. There's nothing more important. There's nothing else we can do but those things."

Brother was silent, but I know he heard me, because I've said the same thing to him several times. And I strongly believe deep down, he also wants to play a role, but he just does not know how or where to start. And I've been also telling mum to give him (and his wife) a chance, not to judge too soon, not to have any preconceptions based on events and unhappiness in the past, but to let them demonstrate what they can do, to let them have their chance at being filial children.

I believe strongly that this is all part of "Operation Eternal Happiness", an effort from all sides to get together and make beautiful memories together to keep, and to keep for life, and to keep even after death. The ways I've seen my brother and sister-in-law bond an interact with mum over the past two days have been very promising. And my nephew's cute little face and multitude of expressions and sweet little bouts of giggles is a wonderful bonus to add to lightening mum's discomforts and adding to her impression that life has been wonderful, and that life continues to be worth all the hardship and pain...